Paths I have followed, from the beginning to the end: itinerations on oncologic palliative care

Abstract

The objective of this study was to understand the itinerations of users with cancer in exclusive palliative care by the health care network, contemplating the diagnostic suspicion until exclusive palliative care. It is qualitative research, based on life narratives of patients and family members. It was used semi-structured interviews and content analysis. Three categories of analysis emerged: Pathways to cancer care; Palliative care in oncology: from myths and taboos to reality; and Autonomy and social support. A multiplicity of itinerations in the search for care was evidenced. It was verified that the walk did not follow the paths previously defined by the managers of the health system. In addition, there was a need to establish a clear and effective communication with these subjects, striving to demystify cancer and palliative care. One must learn to look at these subjects in order to surpass their sick body, seeing them as real people, with their desires, senses, protagonisms, and capacity to re-signify their own existence and their way of perceiving and positioning oneself before the world.